Quilt Community
Care is better when the whole community gets involved
When patients, providers, researchers, and caregivers come together, care becomes stronger, smarter, and more accessible.
At Quilt, we believe excellent care and cutting-edge research should reach everyone — without barriers or delay.
At Quilt, we believe excellent care and cutting-edge research should reach everyone — without barriers or delay.
Communities
What to expect from Quilt Health communities
No matter your connection with the SCD community - from warriors, to parents and spouses, to leading SCD specialists and community health workers - you’re welcome here! We are focused on:
Elevating and weaving together voices from across the community into a single, shared conversation
Helping experts - whether warriors, clinicians or others - share practical and usable information
Distributing the energy and success of the community far and wide
Collaborating with the SCD community
We’re engaging across the sickle cell community — learning from patients and care teams, and partnering with experts in areas like reproductive health and gene therapy — to build from today’s pockets of excellence toward a more connected system of care.
We’re proud to partner with the National Alliance of Sickle Cell Centers - leaders in care for patients living with Sickle Cell Disease, a focus condition for Quilt.
We are delighted to partner with Quilt Health. By matching a purpose built technology solution with the needs of a network of world-class sickle cell centers, we will drive towards improving the quality of care and access to care for people living with Sickle Cell Disease.
As a hematologist, I am excited about the ways in which Quilt Health endeavors to help a far broader range of patients access the best possible care and treatment.
As a warrior, advocate, and founder, I appreciate Quilt Health’s approach to complementing and amplifying—as opposed to duplicating—efforts to advance access to high-quality care for people living with sickle cell.
Upcoming events
Meet us in person
We’re looking for you at these events - come say hi!
Warrior Con 2026
Excited to join the sickle cell community at Warrior Con 26', hosted by The Sickle Cell Community Consortium in collaboration with Sickle Cell Warriors.
2026 NASCC Annual Meeting
We’re attending the 5th Annual NASCC Sickle Cell Centers & Consensus Meeting on July 27-31, 2026. See you there!
Get updates about updates and ways to connect with us
at upcoming events.
at upcoming events.